If you are affected by Lyme disease or other tick-borne infections and want to tell your story, please contact us. Please note that we don’t have enough resources or energy to answer questions. If you are worried about possibly having Lyme disease and need to ask questions, please contact Lyme Resource Centre, Lyme Disease UK, or Lyme Disease Action.
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Gloria’s Story
I am an American who was living and working in Scotland, first as a post-graduate student, and then on a work visa. I love Scotland more than I can express – it is home. In November of 2016, I was living in central Edinburgh, when my flat was infested with mice from the nearby Holyrood… Read…
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Ingrid’s Story
I am currently diagnosed on the NHS with fibromyalgia, chronic fatigue and IBS. I began to suspect Lyme was my issue in 2015. I’m 36 now, and on researching Lyme, realised I have been experiencing symptoms since I was a child. As a teenager I suffered bouts of wry neck, recurring sinus infections and tonsillitis,… Read…
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Annette’s Story
I am Annette, 53 yrs old with 3 children and 4 grandchildren. I stay in a small village in Fife, where I was bitten. I loved my job as a social care worker and enjoyed a full and active life. My favourite time was walking my dog 4 miles each day along the beach then… Read…
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Nicola’s Story
– Where bitten: Isle of Rhum, West coast of Scotland – Where live: Aberdeenshire – Occupation: Previously ecologist – now full time mum. – Initial symptoms: flu like illness, sore knees, stomach pain then profuse sweating, heart conduction problems, meningitis symptoms and inability to walk. After initial symptoms, they progressed to cognitive problems, severe insomnia, night… Read…
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Peter’s Story
It was around my 60th birthday – unforgettable really because the family had booked a hotel and tickets for Les Miserable in London. Every morning I take my two dogs, as it was then, for a walk. There is a nice area of heath land less than 200 meters from the house. It has well defined pathways and… Read…
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Louise’s Story
On holiday in Luxembourg. At swimming pool & after a swim I lay on towel for a few minutes of sunbathing (legs on manicured cut grass). After short time sat up & found tick attached. Tick carefully removed with tweezers. Tick was only attached for short time. No rash & no symptoms. Three and a… Read…
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Jerry’s Story
Hi my name is Jerry and I am Shonagh’s husband. I too have Lyme. I spent most of my working life in Outdoor Education so I was fit and healthy. Although I had many tick bites over the years I had never had a bullseye rash and was always careful about removing ticks. About five… Read…
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Shonagh’s Story
I was a fit, healthy mother of three children living in Edinburgh. In 1993/4 I was on holiday in Sutherland. I had a tick attached and was unaware until a friend noticed and whacked it off my leg. Unfortunately, by this time it was bloated, satiated and leaving anyway. I knew nothing about Lyme. My… Read…
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Kymmy’s Story
In 2010 my husband and I moved to Leitfie which is an area just south of the town of Alyth in Perthshire. In Summer of 2011 I had been walking around the fields near our cottage for the best part of the previous year when I noticed what seemed to be strange ring shaped marks… Read…
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Lorraine’s Story
I’m Lorraine from Montrose, North East Scotland. I was bitten by a tick end of August 2014. I remember the date clearly as at the time I became ill I was away celebrating my 10th year Wedding Anniversary with my Husband, I spent 4 days in a hotel room bed unable to move. A few days… Read…
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Janey’s Story
I was bitten in 2004 while playing hide-and-seek in Beecraigs Country Park near Bathgate. I went to the GP a few weeks later with a persistent rash. The first thing he said was “Did you have any flu-like symptoms at the time you noticed the rash?”. I replied “Yes, I had a full day of… Read…